You are caring for a mother with Alzheimer’s
disease, who sometimes recognizes you as her daughter, but often thinks you’re
her sister or maybe the neighbor next door when she was growing up. Now, you
can continue to grieve for the loss of your “mother” as you knew her, and feel
powerless about helping her in her present condition. Or you can accept this
new person in your life, and see beyond the cognitive decline to the authentic
self that lives inside her. In that place you can meet and embrace one another
for fleeting moments or for a long-term relationship.
Few of us want to confront the reality that illness and
death are an inevitable part of life. We live in a culture of denial, pushing
away thoughts of our own and our loved one’s mortality. How can we learn
acceptance in the face of fear and insecurity? How can we ever accept our own
shortcomings: impatience, exhaustion and out- bursts? How can we bear the
losses, pain and grief experienced by our patient, a situation over which we have
no control? I recommend taking a look at the Big Picture.
We know intuitively some basic truths: we cannot have great
joy without profound sadness. Every beginning has an end. Even more, we know we
cannot be and do everything. Scale down those heroic gestures. Simply accept
that you are only human. Feeling anger, sadness, confusion and resentment are
natural responses. In some cases, you may have had to sacrifice your career,
your sense of self-worth, active involvement in the community and life as you
have known it. These losses can be heartrending for you. Affirm to yourself
that you can and will overcome them.
When you open your heart to life’s possibilities and live
fully in the moment, you can be better prepared for any eventuality. You can
also be a more comforting presence for your loved one. When we learn, truly
realize, that Now is all we have, we can let go of our illusions and efforts to
be superhuman, and savor the magic of each moment. Try throwing your arms open
and embracing the universe, just as it is right now. You can breathe a sigh of
relief that you don’t have to change a single thing.
This may not have been the
experience you wanted, but it can prove to be of great value to you. You may
not be the person you used to be, but you are more of the spiritual self you
are meant to be.
From my book, "The ABCs of Caregiving: Words to Inspire You." To read more, buy the paperback or get the Kindle edition on Amazon.com.
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